Surveillance Epidemiology and End Results (SEER Cancer Database): The SEER Program of the National Cancer Institute collects data on cancer incidence and survival from population-based cancer registries throughout the US. The SEER Program registries routinely collect data on patient demographics, primary tumor site, tumor morphology and stage at diagnosis, first course of treatment, and follow-up for vital status. SEER data can be linked to Medicare claims, the Medicare Health Outcomes Survey, and the National Longitudinal Mortality Study. Custom requests can be made.
SEER link: https://seer.cancer.gov/data/
SEER Pro Tip: Information is really detailed at the time of diagnosis, often including tumor markers and stage, but treatment information is in claims. You can get Medicare claims merged to SEER data, so you can study treatment patterns for cancers affecting older patients. But you cannot get claims for younger people merged to SEER yet.
